DAY TO DAY AUTISM DIARY

Went to pick Daniel up from school for his dinner and he told me(he does not know how the subject started) that his teacher MRS H brought up how a few months ago there was a strange smell in the class room and no body knew what it was . Well the smell turned out to be some toast Daniel had put in his work tray. What had happened was that he was ill and they sent him home from school and he had just been given the mid morning snack which you can pay for and that day it was toast he had put the toast in his work tray and it got covered over by books and paper. Daniel was sent home and never thought anymore about the toast and he was ill for about 7 days so of course this toast was in his work tray and after when he was well was when he found out the smell in the class room was from this toast he had left in the work tray. For some unknown reason which Daniel says he cant remember MRS H asked Daniel about it.(i mean its been afew months now) Daniel's answer was GOD DAM why do you keep bringing that up, its making me feel sad inside. MRS H told Daniel off for swearing. Daniel said he was not as in his head Daniel knows the word GOD and DAM are not swearing but he cant figure out that when put together like that the two words mean something different although because he says it when it could be seen as a reply some people would naturally say they just think he knows really what they mean when he is just copying his peers but you cant tell the teachers that because it does not matter why he said it but the fact he said it. im sorry but i say bollocks in fact bollocks bollocks bollocks what a load of bollocks perhaps she should not keep talking about something that she knows make Daniel feel sad.But the worst part of MRS H complete utter mis-understanding that day was when she told Daniel he knew he was swearing and that he was to stop playing on words. Daniel asked her what she meant. Mrs H told Daniel he knew what she meant and to stop being cheeky. Just after another child started sticking her tongue out at Daniel and Daniel asked her stop . MRS H did not believe Daniel even though other children said Daniel was telling the truth. Daniel stated that he needed a CCTV so he could prove it. MRS H told Daniel to stop playing the fool and joker and not to be cheeky and learn in future to stop being cheeky. Daniel got sent out the class to another class which happens nearly every day(I KEEP TELLING THEM HE NEEDS ROUTINE)-WHAT A JOKE). he stood outside another class and saw the children beckon him in with hand jestures so like what happened once before he walked in thinking it was ok as he had been waved in.but MRS C shouted how DARE you barge in like this and sent him out side to knock the door. Daniel told MRS C he did not know how to knock the door. MRS C told Daniel he always had excuses and told Daniel he was not wanted and sent him to MR G class. MR G was ok and Daniel stayed in his class and helped MR G with some tokens .MR g told DANIEL thank you and then sent him up to the office as it was dinner time and i was waiting.
Some morning.........

after fetching Daniel out at dinner time for his dinner Daniel told me that mrs M had helped him for a little while but told him he had to stop making cheeky comments and to stop using his illness as an excuse. Im getting to the stage where im going to storm in and tell her as it does make me angry. he only says what he sees. she was wearing all green and he told her she looked like a tree. Plus the colour green upsets him. Now the next part really does take the prize for who can upset him the most. Mrs H told Daniel she needed a break from him. (they had only been back two hours after one weeks half term holiday) Daniel told her to have a day off if she wanted a break. Mrs H also said to another lad i bet you need a break from him too. What the hell...... Maybe i should keep him home so they can all have a break .. i nearly never sent him back after dinner time was over.
Seeing his face on the way back to school and with him saying to me he cant help being different and knowing that he trys his hardest really makes me want to line up the teachers who dont understand and make them listen and learn about autism .In my mind i want them to feel how Daniel feels they making him bloody depressed. ok they already made him depressed long ago. Why dont they understand. They have been told they know why he is like he is. The red mist is beginning to form and i cant see it going away unless they stop telling him the things they do and stop expecting him to be a perfect like all the other kids. He cant and never will but he trys his hardest everyday and he knows its not enough as in his own words "its all his own fault as he does not get it".School that is.
i cant believe that bastard school has made him feel like this. blaming him and telling him he is naughty or making excuses. they all deserve to be sacked.
HE CANT HELP IT >>>>>>>>.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.HE CANT HELP IT.HE CANT HELP IT .HE CANT HELP IT HE CANT HELP IT HE CANT HELP IT.

School started to day and Daniel was not in the best frame of mind. Could have been because some kids that go to his school in the year below saw us in a shop and laughed at him for having adhd. it was known by other children he had autism but it took Mrs M to anounce in front of all his class that he had ADHD and since then, a few aweeks ago other kids have been taking the mickey and as i have witnessed it with my own eyes i cant help but feel its MRS M fault for telling the class. It was done as she told him off which is not really acceptable so now everyone knows. I mean would she have said the same thing if someone had piles and couldnt sit still . eg. sit still i know you have piles but its no excuse. ... i think not. well got to fetch him out of school at dinner time so i will find out how his morning has been. Its really hard leaving him somewhere that makes him feel depressed and scared and all i have heard from Daniel the last few days is how he is worried about MRS M. Which ruined his last few days off of half term. Anyway not long until the summer holidays now. I bet if anyone from school reads this they will think how dare i write these things. WEll there is nothing wrong in writing the truth and we know what we know and of course they will always defend there actions as in the best interest of Daniel and the school and i know when i have spoke to teachers that they dont take in what i say so how can i believe they listen to Daniel.The fact of the matter is as they have told Daniel himself they think Autism is no excuse to behave differently from everyone else. How wrong they are. Autism is not an excuse its a disabilty which can be helped by the right treatments such as understanding while teaching until the teachers learn this every child that has Autism will never learn anything other than hating and not understanding school. www.nas.org.uk/campaign

Daniel is fretting today as he knows school time is not far off. It really must make him feel terrible at school for him to have changed from being calm to being niggly and grumpy.
Tried to get him out on the garden but he wont come out side in case there is bees or wasps or flies.
We both nearly got run over in the alley yesterday by two idiots on quad bikes . Now he is frightened of going to the car even more now in case we get run over. The car is parked out in the cul de sac and i cant park it right out side so now i have had to promise to carry him to the car but if that what it takes then so be it.Daniel is on his pc at the moment and as he had a bad night where he never slept much more than 30 minutes in a row i am about to sit down and watch the england friendly. I cut the grass yesterday and it was like chopping down a jungle as it has rained for about two weeks and i could not cut it for the last two weeks and my back feels like i cut a football pitch instead of a small patch of grass but the good news is my tomatos are doing well. I dont know why i grow them because we dont like them . But then we do lots of things we dont like. like sending our child to school . hope this finds you all well

Education is one of the most important issues when bringing up children with autism.
Now my NAS monthly mag arrived today and in it is a new campaign they have started as NAS Advocacy for Educcation get over 1800 telephone calls a year from families about problems regarding their child's schooling and we all know these problems are quite often ignored by the teachers and its time we did not have to battle everyday to get the right support for our children. so please join the NAS make school make sense campaign today to help every child get the education which they deserve and is their right. Nas hope that by working together we can all put pressure on local and national decision makers and persuade them that they must make school make sense for children with autism. so please visit www.autism.org.uk/campaign and help support the right of very autistic child to get school to make sense. thankyou.
today i will sending my make school make sense card to the solihull's council leader please do the same.

Went to see my mums new dog today. Her other dog of 17 years called sally sadly died and she decided it was time to have another dog as she lives on her own and missed the company . We never saw the dog today as my mum had her friends round and there was two other dogs present and as Daniel has a phobia of dogs it was not fair on him if we went in. Although saying that he did like sally as all she did was lie in her doggie bed as she was old. He cant focus on dogs that move or jump up and this really frightens him .although were hoping he will hopefully get to like my mums new dog from birmingham dogs home but with her friends dogs there too it would have been much to much for Daniel to handle so like i say we did not stay. I had to replace the fan today on Daniels cpu in his pc has yesterday it started making strange noises but a quick trip to pc world and JUst £2.99 and 5 mins to fit all is well and he is happy again. Was supposed to go to a party arranged by someone from the autism support group we attended but my wife was feeling a little on the off side so we did not go.. A fly got in the car on the way to pc world and caused Daniel to have a panick attack. Managed to stop the car quickly in a safe place and daniel vacated the car and curled up on the pavement while i got rid of the fly. Daniel asked the lady who served us why she called me love and i had to quickly explain to Daniel as he told the lady on the till that only his mum could call me that as daniel thinks only people married or going out together can use certain words but the lady at the till just smiled which was nice as some people tend to take offence at his comments.We went to mcdonalds on the way home and Daniel had 6 nuggets and fries with a tropicana orange juice and left all the nuggets as he said he had heard about a guy kids talked about at school who had eat nothing but mcdonalds for 1 month and that they only used old age chickens to make the nuggets and it was not fair to take away the mums and dads of young chickens just so we could eat them. I told him they used young chickens now and that was because the old chickens were made into a paste and horrible things were added to the nuggets but now the nuggets were all breast meat and he screamed and hid her face and shouted there is loads of old chickens without their son and daughters because they have been made into chicken nuggets. I just repied that this was mostly true and he never spoke until we got home.After fixing his pc he was in a good mood and i hope he does not worry to much about the chickens . Well its nearly time to watch the telly as there is something i want to watch so i hope this finds you all well.

well Daniel had a whole hour of sleep in a row last night which was good. Even better he had quite few periods where he stayed asleep for 20 minutes so the suitcases under my eyes shrunk by about 1mm but saying that he was wide awake by 5.50am and the only thing different really this morning was watching all them housemates on big brother sleeping at 6.00am. I dont envy them being in the big brother house but i do envy them being able to sleep untill its lunch time. If i won the golden ticket out a kitkat i would go in and sleep- sleep and then sleep somemore but saying that i would more than likely put it on ebay to sell so i could buy a extra large bed so when our son climbs in there would more room to avoid being kicked or elbowed in the night.Daniel wanted to use my pc today but i urged him to use his own in his room as the noise of someone playing a game and typing what seems a thousand words a minute which really does sound like a train clattering over a worn out railway junction is just two much to take 7 days in a row so after a defiant im going to annoy you for 3 hours tantrum to make me say ok use mine he finally gave up and went to his own room .So apart from the constant calls to make sure we have not done a runner we have chance to sit in quiet for a while apart from someones deep bass beats beating through its been quite a good morning. Although its saturday its a no shopping day today as i took Daniel out yesterday as the teachers had a training day well i think thats what they were having. Lets hope it included some ASD awareness training but i doubt it. Good job got we went shopping today as its raining and that makes Daniel worry .Tomorrow if my wife feels upto it theres a party which has been arranged by a mother and father of a autisic boy who attended the ASD support group and there will be about 10 to 15 other children there all with ASD so im sure it will be great fun and i bet we learn quite a bit too.
And it will nice to see the other parents from the ASD support group again . Although i was the only male at the group i never really noticed as every one was great. I am still annoyed over the stage 3 warning my son got a few days ago and as yet not been able to talk to mrs M as she apparently was not going to be back in school until the holidays were over so i have to stew for a week. Whats really the worst thing is Daniel is worried he will get expelled and he shouldnt have to worry about things like that but he does and another thing i need to talk to school about is to tell them to stop telling Daniel about how many children go to mainstream senior school . One teacher keeps telling him its not certain he wont have to go to one and that theres 1000,s of children there . Daniel has a fear of large crowds and then when he reacts to what they have said they wonder why. In any case i would not ever send my son to mainstream senior school ever. i would have no choice but to teach him here at home . But as were just waiting for the final printed sen statement which will have our school of choice on it that should happen as there is plenty of time before september. I watched a program about a school in Australia on the teachers tv channel who teach children with ASD and its amazing . I cant for the life of me know how Daniel has managed to cope when i see the type of teaching he really should have had . Well i know all schools differ but i really cant wait to see how Daniel gets on when he attends a special school and they give him the kind of contact and encouragement he gets at home instead of the negative approach he gets from teachers at present who just dont care. well as this is supposed to be our diary and not a place to rant on like my other blog i will change the subject now. Daniel is still in good mood but asked how many days it was until school started again so i told him and he settled down. He tells me he hates school because the teachers pick on him. Well he is out of their reach for the next week so in my mind thats good. Time to get some important letters written so im off . i hope this finds everyone well.

Daniel decided to climb into our bed again last night . He seems to be twice as long and all knees and elbows when lying down and even if he does go to sleep moves constantly sort of like a leaf in the wind that has no choice to move because it cant control it self in where it whats to go or be as the wind is in control and this is like how ASD and ADHD effect Daniel but Daniel moves with the ferrosity of a twister so in the morning were all poked and prodded and completely worn out but this happens every night so you tend to get used to it and as at least we get some sleep by not taking him back to his room where he would just scream all night or groan it seems the lesser of two evils. I asked him when he was going to sleep all night in his own bed and he replied when he is 25 so only another 14 years of sleepless nights to go. If you dont see the funny side you would go mad and crazy and end up spinning in circles while waiting for the men in white coats to come collect us. I think its the extreme love you have that keeps your engine going. And the Massive challenge that everyday brings. But GUESS what. we still think were the luckiest parents alive as we have Daniel. WEll Daniel has been playing on his cut down version of a snooker table and today his favourite saying is " i am the best there ever is" "the best there ever will be and the best there ever was in anythinnnngggggggggggg" the anything droning on for about 2 minutes coupled with his loud sudden screams which still make me jump when im not expecting them but i should according to Daniel always be expecting them as i know he always does them so its my fault when i jump while drinking a hot cup of tea and i burn my legs again for the 100th day in row and Daniel is right of course. Anyway He is in good mood today because its holiday time for the next 11 days and he knows he will not be picked on for next 11 days which has made him happy but he he is still worried that he will be excluded from school because of this stage 3 warning and this something Daniel should not be worrying about . i really must go for the moment as Daniel requires my help . hope this finds everyone well..

This morning we got a letter from school.
its all about the day before yesterday in school which you can read in this blog as date 23rd may.
Here is the letter
I write to inform you that your child Daniel has been issued with a stage 3 warning on the schools Behaviour policy.This mean that he has been involved in behaviour in school which has caused the teacher in charge to take action (you would never guess who - yes mrs M) letters contuines- Their behaviour has caused disruption to the entitlement of every child to learn.
Because of this ,several privilages have been withdrawn in line with our policy.These include the loss of all playtimes for the next day, being monitored for 5 days, taking no part in the next class golden time and not being allowed to take part in any school extra curricular activities for the next 5 Days.
we hope we can work together to support your child in understanding that further disruptions will not be in the best interest for the learning of your child and we would appreciate it if you could discuss your childs behaviour with him at home. (what do they think we have been doing for 10 years-sleeping)
many thanks for your support ( wheres daniels support)
yours sincerely mrs M
Key Stage Co-ordinator.

i will add to this when i have had a cup of tea so dont go away.

Well after ringing the school Mrs M is unable to speak to us at present.

Read what i have to say about all this here at my autism blog

Mrs M strikes Again.
Daniel has been told off today because he chucked a book over to someone who had asked for it.
apparently it was thought someone else had thrown it but Daniel said it was him and that he didnt mean it to hit anyone. He was not given the chance to say why he had thrown it, Daniel tells me he threw it because he was told he could not get up a little earlier in the lessson and as he had been asked to pass the book, threw it instead so he did not have to move.He was given a yellow card for this.
she told Daniel he had been cheeky in maths as he had asked her to explain what a word means. Daniel said she told him he was just pure attention seeking and that it had nothing to do with his ASD or adh T yes she does not even know the name of whats wrong as it AdhD so how can she decide its not if she does not even know whats it called. Anyway Daniel told her he does not have adhT but adhd and she told him off by saying how dare you correct a teacher and Daniel tells me he was really scared inside. I just cant imagine why she takes such offence she knows he has ASD and ADHD i suggest MRS M you go and read the same book THE Head told me to read and read it it may enlighten you as you make out to me you understand but its not me you need to show its Daniel. School know that if Daniel asks for something to be explained it should if she thinks Daniel is seeking attention she may well be right he does ADHD . I suggest she looks this up on the internet Too. I may seem like i expect them all to just let him off but it seems to me there the cause of it. And please Their teachers. are they not going to have some bad days like i said in my other blog Daniel has bad days everyday and cant escape at 3.15 pm everyday . i not saying let him off im saying explain to him better and stop calling him cheeky and saying its not his asd or adhd .
Stop FRightening him . INSIDE HE IS IN PIECES BUT CANT SHOW IT. How many times do i have to explain this and you say Daniel does not listen.